CCLG
Childhood Cancer Survivor Groups

In this booklet we have tried to provide useful information on some of the more important late effects, and issues associated with treatment of cancer as a child. We hope that it will help answer most of the questions you have on surviving childhood cancer. Survivors groups and meetings offer an opportunity to meet other survivors and gain more detailed information for those that want it.

In 2001 the first international survivors meeting took place in Luxembourg, and has been part of the International Confederation of Childhood Cancer Parent Organisations (ICCCPO) conference ever since. These annual meetings, run by survivors, for survivors provide an opportunity for people from all over the world to meet and learn about issues related to their disease and its treatment. It is a good place to hear about how survivor groups work in different countries, and get ideas about how to start a survivor group in your area. The CLIC charity has kindly sponsored these meetings financially.

The first UK survivors’ meeting, again sponsored by CLIC was held in Bristol in 2004. Experts in their respective fields discussed issues more relevant to survivorship in the UK, and covered in more detail some of the subjects raised in this booklet. UK survivors were also given the chance to say what information they would like to have included in this booklet.

Besides being informative, these conferences provide the opportunity to meet and make friends with people who have had similar experiences to you.

 


For information on Childhood Cancer Survivor Groups visit www.icccpo.org


Nicole, vice chairperson of the 
ICCCPO survivors group
Above: Nicole, vice chairperson of the ICCCPO survivors group